Tuesday, May 22, 2018

Summer Break Approaching

Another school year is drawing to a close!  We still have a few weeks to go, but summer break is right around the corner and I'm excited. I love how all activities go on break and life slows way down, I love the hot weather and long hours of sunshine, and I (mostly) love having all 3 kids home all day long.  My energy level is lower on school breaks, but my stress level is also a lot lower. 

The school year went well, for the most part.  I really like the kids' school and have been happy with their teachers and the school staff.  There are always going to be some challenges when your student has special needs, and we went through a number of challenges, but I was happy with the way the school handled things.  (I'm being very vague on purpose, but would be happy to talk to anyone offline in a lot more detail.  I have lots of opinions about IEPs and behavioral charts and mainstreaming and all things special ed, so if you're going through the process and want to chat, hit me up!)  Josh seems reasonably happy, considering school will probably never be his favorite thing, and we are seeing him learn and grow - those are the main things I want for any of my kids in an educational setting - so I'm happy. 

One thing that I think is worth mentioning is how VERY much a kind word can mean to the parents of a special education student.  The system is designed so that parents get tons of feedback on academic and behavioral performance.  If these are areas of struggle for your student, you're going to be getting lots of negative feedback all year long.  I do want to know how academics and behaviors are going, so that we can try to problem solve; I don't ask that every communication from the school ever reminds me of what a precious snowflake my child is;  I know teachers are busy and I don't want to add to their long list of tasks;  and I know that none of this is personal, and it's not meant as an indictment on my parenting or as a grade on my child's entire worth as a human being.

But when you're getting weekly feedback that is mainly focused on problems, it feels like an oasis in the desert when the teacher communicates that she loves having your child in her class, she finds the way he incorporates tornadoes into everything endearing, his smile is infectious - anything positive to balance the negative.  We did get positive feedback from teachers this year, and it really meant a lot.

(I'm trying to remember that this goes both ways, and that teachers and administrators hear a lot about problems, and are never thanked and encouraged enough - if you are a teacher or school staff person reading this, thank you for all you do!)

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I have two goals for the summer, and I would love input on either of these things:

1.  Read stories - I just read this great book called "The Read Aloud Family" by Sarah Mackenzie, and she strongly encourages reading chapter books aloud to your kids.  We do a lot of reading with the kids, but haven't delved much into the world of chapter books - what are your recommendations for the 5-7 year old set?

2.  Get outside a lot - I would love recommendations of family-friendly hikes in the Lake Tahoe area, and lakes with beach area that are within a 1 hour drive of northern Nevada. 

Monday, May 14, 2018

Enneagram questions

I've been learning about the Enneagram, and I have some questions for those of you who are also interested in the Enneagram.  For those who have never heard of it, the Enneagram is a personality assessment tool, kind of like Meyers Briggs.  Here is a link to the 9 personality types - you can get an idea of which personality type sounds the most like you by scanning the list.  Allegedly, all of us fall into one of these categories to describe our primary motivations and fears - you may recognize some of your traits in other types, but there is one type that is your true home base.

So here's my dilemma:  I thought for sure that I knew my type, but after listening to some podcasts about Enneagram types, now I'm waffling between two types and can see significant pieces of myself in a third type.  I'm wondering if any of the rest of you had trouble identifying your type (and how you resolved it), or if you decided that you are a split between two types (and if this, can the Enneagram still be useful to you?).

Here are the 3 types I identify with and some of the key ways in which do and don't fit (it should be noted that these 3 types are linked on the diagram above, and this might have something to do with my confusion - these types might get easily confused).

Type 9 (The Peacemaker) -  The Easygoing, Self-Effacing Type: Receptive, Reassuring, Agreeable, and Complacent

Do fit:  This is the type I first thought I was, and this is definitely the way I have always conducted myself in friendships and relationships.  I prioritize smooth waters, and I try to avoid conflict (not just externally, but even acknowledging in my head that conflict exists).  I let the other person take the lead in big and small ways.  

Don't fit: -- Nines tend to procrastinate and not finish projects, and the "deadly sin" they gravitate towards is slothfulness - these are not really my main areas of weakness.  Also, while I act like a nine in interpersonal relationships with close adult relations, I don't act like a nine at all in other contexts.  There's probably not a ton of nines who went to law school, for example.  
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Type 6 (The Loyalist) -  The Committed, Security-Oriented Type: Engaging, Responsible, Anxious, and Suspicious

Do fit:  This is how I parent and how I operate within the workplace or a group I'm committed to (such as church, a volunteer organization, the family unit).  On the positive side, I am loyal, dependable, and involved once I'm part of the group.  On the negative side, I definitely operate too often out of fear.  Also, I will defer to the leader's opinion and doubt my own thoughts.  This type ping pongs back and forth between opinions, and Kenny will tell you how often I do the "on one hand, on the other hand" routine.  This is the type I think I probably fit best into now, but it's still not a perfect fit.

Don't fit:  This type imagines worst-case scenarios and plans accordingly.  I approach special needs parenting this way, but not much of the rest of my life this way.  (Although I can Debbie Downer / wet blanket / devil's advocate with the best of them, so maybe this is a version of that characteristic of Type 6.)  Also, this type is often emotionally reactive, and I usually keep my external emotions on a tight leash.  
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Type 3 (The Achiever) - The Success-Oriented, Pragmatic Type: Adaptive, Excelling, Driven, and Image-Conscious

Do fit:  In school, it was VERY important to me to get the best grades, achieve athletic success, win awards, go to a good school, and anything else that was an external mark of achievement.  I did and still do care too much about what other people think of me.  This was true to a lesser extent in the workforce too - I wanted to excel at my job, win cases, and be recognized for doing good work.  

Don't fit:  Right now, as a stay at home mom, I'm completely out of the world where you're gunning for top grades and promotions and awards, and I feel very content to leave those things behind.  I have very little ambition to get back into the working world quickly and no desire to climb achievement ladders.  I do still care what people think of me, but it no longer feels so core to my identity.   (However, if / when I do get back into a school or work situation, I think the Type 3 characteristics would pop back out really quickly.)
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In summary - I feel like the way I behave under the rubric of the Enneagram is very dependent on context, and I'm not sure there's one type that is a perfect match to me.  I feel okay with this (a Nine response) and I feel skeptical that all of the billions of people in the world fit perfectly into just nine personality types (a Six response).  But the Enneagram expects you to primarily fall into one type.

So for those of you who are fellow Enneagram enthusiasts, here are my questions:

  • What's your type?
  • Do you feel pretty confident that you fit squarely within that type and not in any of the others?
  • If yes, has that been true for you at all stages of your life and in all contexts?
  • If you don't feel like you fit just one personality type, how do you use the Enneagram to help you?

Monday, April 23, 2018

Podcasts

I'm a relative newbie to the world of podcasts, after resisting even trying them out for many years, and you know what they say - there's no zealot like a convert.  Podcasts are awesome!! And I want to spread the word, because you might really like them too!

Here are the reasons I waited so long to give them a try, and why you shouldn't let these things stop you because podcasts are great!:

  • Technology is hard - I'm kind of a technophobe.  I don't want to learn new forms of social media, I don't want the latest gadgets, I still keep my calendar on paper, and I will guaranteed mess up group texting at least 50% of the time.  Podcasts sounded like a complicated thing to figure out.  It turns out:  not complicated at all.  You download a free app to play them (I use Stitcher), and then you search for the shows you want to listen to, and then you hit the play button.  Easy peasy!
  • I don't need more in my digital diet - I already spend more than enough time on Facebook and Instagram and don't really need or want more screen time, but podcasts feels like listening to an old-timey radio program.  You're not looking at a screen while you listen, and it's not as frenetic and bite-sized as most digital pieces of information - if anything, it probably helps increase the attention span to listen to 20-60 minutes of focused content on one topic.  Also, you have more control over the content, so you're less likely to accidentally stumble across something that makes you angry for the rest of the day.  
  • I don't have time - This will look different for everyone depending on what your day looks like, but you probably do have time, because podcasts fit in perfectly as a multi-task to engage your mind while your hands are busy.  I listen when I'm cooking dinner, or folding laundry, or making sure my 1 year old doesn't drown in the bathtub - they are an excellent distraction for chores, which we all have.  But you could also listen during a long commute, or during exercise, or in some cases, during work. 
  • Podcasts sound boring - There is such a variety that you're sure to find something that appeals to you.  There are practical podcasts on home improvement, parenting, cooking, etc.  There's spiritual encouragement.  There is tons of commentary on news, politics, and pop culture.  All the NPR shows are available.  There are stories told in episodes.  There are interview shows.  And one of my favorite types, which will appeal to any of you who have Input or Learner as your Gallup strengths, are shows that give you information about random topics (such as, "how mirrors work"). 


It's hard to do recommendations in a blog post because it depends so much on what you're interested in, but here are a few that I really like:  Risen Motherhood (on Christian parenting), Stuff You Should Know (exactly what it sounds like), NPR Pop Culture Happy Hour (on movies and TV shows), and What Should I Read Next? (book recommendations).

What would you recommend?  I'm always looking for a good new podcast! 

Friday, March 16, 2018

In Defense of Team Sports

Our two oldest kids are elementary school age, and so we have entered the world of team sports.  We're just dipping our toe in so far with an 8 week recreational soccer league.  I played 4 sports over the course of high school, including the off season travel teams and summer camps, so I know how very much team sports ramp up in intensity as the kids get older.

We all want our kids to be happy and have fun memories, but there is the question of whether the enormous amount of time and money that can go into team sports is the right way to make this happen.  Everybody's circumstances are different, and I'm not saying every kid has to do all the sports all the time, but I think team sports can add tremendous value and teach important lessons in childhood.  (I'm writing this blog as a reminder to myself, too, because being a sports parent, while it has it's fun and cute and thrilling moments, is a very different experience from being the athlete.)

Here are just some of the things I think kids can learn from participating in sports:

  • Cooperation - How many times in life do you work together with others on projects, whether it's a team assignment at work or raising a family or being on a church committee?  Team sports are a fun way to start to learn that delicate balance of working well with others: sometimes taking the lead and sometimes being the follower, sometimes doing more than your share and other times relying on others to make the big plays.  Watching teammates do things that sometimes amaze you with their brilliance and other times flabbergast you with their foolishness, and learning to handle it either way.  
  • Discipline  / Hard Work - I have SO many memories of doing wind sprints, stair drills, and other torturous exercises designed to get you in peak physical shape.  There's nothing fun about doing these things that make you feel like your legs or lungs are going to collapse, except this -- that moment when you're playing the championship game and you're able to go hard through the whole game because of the work you've put in when no one was watching.  This practice of working hard day by day so that you'll be ready when the big moments come along has benefits in education, work, spiritual life, and so many other things.  
  • Resilience / perserverance - Many athletes will get to experience the thrill of victory; all at some point will experience the agony of defeat.  Learning how to deal with the various disappointments that come with sports - injuries, getting cut from a team, losing the big game - is great starter training for the bigger disappointments that will come along in life.
  • Time management / responsibility / organization - In the high school and college years, athletic practice takes up at least a couple hours per day.  You have to learn how to fit this in with other things (homework, job, other extra-curriculars), and how to eat and sleep at least well enough to make it through practice.  (Sometimes these lessons are learned the hard way, like the time when Surge was doing a promotion and giving away free sugary sodas right before basketball practice.)
  • Friendship - There's something special about relationships that are formed when you're embarking on a shared mission.  When you go through some of these things listed above together - conditioning until you puke, winning the championship or losing every game the whole season - it forges a special bond.  Add that to the enormous amount of time you spend together, and chances are good that some of these teammates will be your friends for life.
  • Healthy Living / Exercise as a Habit - This one is a little more obvious, but it's great to incorporate exercise early on to set kids on a trajectory for a healthy life.  Participating in team sports gives you some knowledge about how to do things like stretches, weight lifting, aerobic conditioning, and agility drills.  It gives you muscle memory for pushing past pain.  And it sets a high standard in your mind for what physical fitness should look like.  (I'll be honest, I rarely meet this standard since becoming a parent, but I still think it's a good thing to have in mind and strive towards.)
  • Strategy - By learning plays, or learning that there are better and worse ways to do things, or learning that you need to set several consecutive things in motion to have a successful outcome - these are all valuable starts to learning that it pays to have a strategy in your various endeavors in life.  
  • For girls especially, body image and self confidence - There is enormous pressure on women to look good, as defined by the fashion magazine standard, and girls base much of their self confidence on their physical attractiveness.  Sports can't take this whole problem away, but I think it can make girls feel more body positivity by seeing the amazing physical feats that their bodies are capable of, and confidence based on athletic accomplishment rather than just how they look.  

Ordering equipment from the Internet = you might end up with shin guards sized for a newborn.

That's my case for why team sports are worth it.  Of course  every team sports experience is not going to provide all of this; and not every kid is going to be into team sports. 

But some of my very best friends, some of my best preparation for the rigors of college and law school, for how to conduct yourself in a job, for how to get through the harder times in life - it came from lessons learned in sports.  Anything you would add to this list?

Thursday, March 8, 2018

Special Needs Parenting and Perspective

There's been a few things on my mind lately, all orbiting around the themes of special needs parenting and perspective.  So I'm going to consolidate it all into one post and we'll see how that goes!

Item One:  Balancing Chill with Vigilance

Here is a key ingredient to both good mental health and a strong faith: you don't spend all your time worrying.  One thing that helps cut down on hours spent worrying is the realization is that you're not in control of most things anyway (and, for people of faith, the belief that God is in control).

Not worrying goes *way* against the grain of my natural personality.  When you add in special needs parenting, you get the added (perverse?) incentive that sometimes worrying DOES pay off in a big way.  The more time you spend discussing ideas with other parents, or pouring over medical journal articles, or checking and checking and checking the Facebook groups, the more you increase the chances that you will find the doctor / medicine / sensory solution / diagnosis / diet / therapy / school support / supplement that will improve or possibly even save your child's life.

But, it also means you will worry needlessly about extra things, both things you have identified and things you worry you might have missed.  My latest round of worry for Joshua was the possibility that he had a blood clotting disorder.  I was worried about this mostly because it's common with his chromosome disorder, but also because he has some trouble with nose bleeds and history of a blood transfusion with surgery.

It would be crazy to get a referral to a specialist to check on hemophilia just because a child living in a dessert climate gets nose bleeds -- you would never do that for a medically typical child.  But the nature of having a child with a rare disorder is that you can expect 1) that unexpected things WILL (sometimes) go wrong, and 2) that the doctors (again, sometimes) will NOT be watching out for these things because they're so unusual.  

When we went in to the hematologist, we discussed a bunch of things about Joshua's medical history, the doctor Googled at least 3 things in front of me, and then at the end of the appointment he thanked me for educating him (about the link between 4q deletions and Hemophilia C, and about the latest treatments for Pierre Robin Sequence) - which is cool, in a way, but it also puts a lot of pressure on special needs parents to know their stuff, because doctors need you to educate them when you're dealing with rare.  

The good news in this anecdote is that J does NOT have any kind of blood clotting disorder!  His labs were normal!  But then this begs the question -- was my worrying worth it?  If he would've tested positive, then it absolutely would have been - but he didn't.  This is the example that we're dealing with this month, but new concerns come up all the time, and it's tricky to know how to handle that in a way that's healthy (for me and for Josh).  I would love thoughts on how others strike this balance between not worrying and watching out for the medical things that doctors might miss.  

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Item Two:  My Lent Challenge, Perspective, and a School Update

I'm doing a Lent challenge with my prayer group to turn complaints into gratitude.  When it comes to Joshua's special needs, I am a complaining machine, so this is the place where the rubber hits the road for me, and the place where it would be most helpful to do the exercise and realize all that I have to be grateful for.  Here we go!

The complaint:  I'm tired of Josh having procedures and blood draws and doctors appointments as a constant part of his life.  I'm tired of the stress it causes him and the worry it causes me.  

The gratitude:  I'm very grateful that Josh does not have a blood clotting disorder.  And I'm grateful for other things that tend to come with his syndrome that he has not had trouble with (such as seizures), and for things he was born with that healed on their own with no surgery (such as his atrial septal defect).  I'm grateful that God has protected him through all his surgeries, and provided medicines and supplements to help with other issues.

The complaint:  I'm tired of school being a struggle.  I feel sad that the chromosome disorder causes learning struggles, and frustrated that since school is designed for a typical student, it often doesn't work perfectly for him.

The gratitude:  I'm grateful that he's at a school where the administration, teachers, and staff value and support students with special needs, even (especially?) as the district is strapped for cash.  I'm grateful that Josh likes his teachers and is making forward progress.  I'm grateful that things are going okay with fellow students.  I'm grateful that everyone on his team knows the things that make him excited and use those things to motivate him.

The complaint:  I'm tired of food still being a battle and still needing to be planned in every situation.

The gratitude:  I'm grateful that we have a wonderful private occupational therapist.  I'm grateful that, after YEARS of spinning our tires with eating, Josh is having a huge burst of willingness to try new foods.

And, in areas that continue to be challenging, I'm grateful that God will someday wipe away every tear and make all things new.

Thursday, February 15, 2018

Calling Congress: it's not as scary as you think!

Like everyone else, I was so sad to see the news of another mass school shooting yesterday.  And I quickly fell into the trap of cynicism:  there will be uproar for a few days, no real changes will be made, it will happen again.  But you know what?  That's how people always feel until change DOES happen.  This is not the time to throw our hands up in the air, this is the time to speak up!  So I'm writing a blog with some thoughts on calling your Congressperson.

I've talked to a few people who feel passionately about a political issue but are intimidated to call their Congressional representative.  I interned at a U.S. Senator's office for one summer, and while I was the low low low person on the totem pole, it did help me see some things about how this all works.

There are several ways to contact your Congressperson -- email, letter, and phone.  (Also visiting, if you happen to live close to one of their district offices.)  All of these are easy to find through Google.
The phone call is the best combination of effectiveness and efficiency for making your voice heard.  We are a culture that's shying away from phone calls and I get this - I rarely make phone calls when you can instead communicate by text or email.  But Congresspersons take phone calls from constituents more seriously than an email petition that people signed with one click.  (Not that this is a bad thing to do -- all the communications help.)  Phone calls on issues are tallied, and the tally is given to the Senator.  With emails, it is a lot more variable. 

Here is what usually happens when you call a Congressional office:  the person answering takes your name and address.  This tells them if you are a constituent and sometimes facilitates a response letter.  Then they will ask why you are calling, you tell them, and they thank you for your call.  The whole thing takes less than a minute, unless you choose to try to keep them on the phone longer. 

Here are some things that will not happen:

  • They will not be rude to you - even if they vehemently disagree with you, they know that their job depends on pleasing constituents.  They may not be able to vote the way you're hoping, but they will be nice about it.  
  • They will not try to engage you in a policy debate - they have access to the leading policy experts on both sides of the issue, so they don't need to engage constituents on policy matters, either for sport or for information.  They do need to know which way public opinion is leaning.  
  • They will not keep you on the phone for an extensive amount of time - they will respect your time, and they need to get the phone lines open for the next caller.
  • The Congressperson won't answer - it will be a staffer or intern on the line.
It is perfectly fine if you write down exactly what you want to say on a piece of paper and read it verbatim.  If you have a personal story related to the issue and can succinctly communicate it, that is helpful.  You can call with a very specific request ("I want the Senator to vote against LB???") or a very general request ("I would like the Senator to take action to oppose gun violence".)  

I hope this blog doesn't come off as patronizing, but I really want everyone to feel empowered that you CAN call your Congressperson and they DO want to hear from you (because being in touch with constituent opinion helps them keep their job!).  Now I'm going to make a few phone calls :).  



Tuesday, February 6, 2018

Life with 3: Actually, it totally does live up to the hype

Last year, i wrote about how adding a third child was no big deal , when we were a breezy one month into the experience.  Now that we are 15 months in, I'd like to amend my opinion. 

Here are some things I didn't take into consideration when writing that first blog:

Easy newborn
1.  Ivy was a SUPER easy baby.  Especially as a newborn.  She slept all the time (probably 20 hours a day).  She fed easily, she let me set her down, she hardly cried, she would fall asleep anywhere - it was pretty unbelievable, honestly.  Now that she's older, she still has a super sweet personality, but she's a very typical toddler - very active and independent, and needing more in terms of interactive play and snack preparation and supervision.  She's a full time project, which hugely changes the dynamic of how easy or hard it is to balance everything else.  Which leads into item 2...

2.  Attention for each individual child is spread super thin.  Even when Kenny's home, there are times when it's very challenging that the kids outnumber the adults.  You get these moments where Josh needs intensive help with his homework, Zoey wants to read a book, and Ivy's climbing the bookshelf.  Or Josh needs
Active toddler
supervision in the bath, Zoey wants to play a board game, and Ivy wanders into the kitchen to eat some dog food.  It's a precarious and crazy making project to meet all the physical and emotional needs.  Hats off to all of you who somehow do this with MORE than three.

3.  It makes life more fun and interesting to have kids in a range of stages, but more challenging too.

For example, it's fun to play increasingly complicated games and read increasingly sophisticated stories to the big kids, but it's hard to do this well when you have to pause every 30 seconds to check on the one year old.  And it's restful to cuddle the one year old to bed, except when the two bigs are simultaneously having an unsupervised wrestling match downstairs.  There's just not a lot of down time in this stage of life (except for breaks graciously provided by my husband and in-laws).

This blog probably sounds like such a debbie downer, but I don't mean it that way.  It's more of an attempt to be honest about the challenges of of raising three kids.   (I'm sure there were some of you who read that first blog about how adding a third child is easy peasy and thought "just wait" - and I'm telling you that you were right.)  While it's challenging, it is absolutely worth it - I can't imagine life without any of the three in it, they all add something special to our family.  There might be forthcoming blogs about that.  In the meantime:  any advice from veteran parents about how to parent older kids well and still keep the one year old alive?