Monday, December 7, 2015

On Bill Bryson's Short History of Private Life

 I just read Bill Bryson's "At Home: A History of Private Life".  Bryson provides a concise history of domestic life by moving through each room of the house and explaining the history of items and concepts related to that room.  (So in the kitchen, you learn about why salt and pepper are our staple spices; in the bathroom, you learn about the history of hygeine and sewage; etc.)  If that description sounds compelling, you will probably love the book; if it sounds dull or hokey, you will probably hate the book.

I fall in the "love it" camp, although I admittedly skimmed some of the chapters in order to get the book back to the library in time.  (This book is probably best read a few chapters at a time, with breaks in between to read other types of books, so that you don't get information overload.)  Here were my favorite parts:

Perspective -- This is my favorite thing to take away from historical non-fiction books, and this book is loaded with facts that provide perspective on where we are now, how we got there, and how it could be different (and almost always, worse).  Perspective can come in a number of forms:

Only loosely related to my "perspective" section, but funny.
  • How good we have it now -- We have indoor plumbing, electricity, and appliances that automate our hardest chores.  We have the option to keep our houses comfortably warm in the winter and comfortably cool in the summer.  We have abundant food and clothing, and on top of that, most of us have tons of extra stuff to make our houses more beautiful, personalized, and fun (or sometimes, just more full of boxes).  
  • How it's easy to see what doesn't make sense about a different time and place, while it's much harder to see the silliness in your own culture - Bryson describes notable past fashion trends (women wearing their hair in 2 foot poofs that would sometimes catch fire), time intensive and dangerous working schedules (including 4 year olds working as chimney sweeps!), and changed social attitudes on parenting, sex, hygeine (bathing once a year or less?!), and all kinds of other things.  These things seem so obviously non-optimal now - it's interesting to think about what cultural blinders we have to the crazy that's happening in our own time and place.
  • How some things are much older than we might imagine - cave men wore shoes that rival modern hiking boots in comfort and grip.  
  • While other things are very recent -- forget about being totally up to date - the concept of being "comfortable" in your home is only about 200 years old.  Before that, you couldn't expect to have room temperature warmth, or keep out all the elements perfectly, or have really desirable sleeping and sitting arrangements.  
  • How people don't feel jealousy or envy or longing for a thing until they realize it exists -- Even the richest households had to keep themselves entertained by candlelight at night until electricity was invented.  No one minded gathering around the candlelight for knitting, reading, and playing cards, because no one imagined an alternative.  But now that we have electricity, you would be hard pressed to find an American household that ever spends an evening like this, except maybe in a storm or for a designated "turn off technology" night.  
Context --New parents-to-be who research labor and delivery methods will learn about the possibility of home birth.  In support of home birth, you might read the "supporting" fact that the vast majority of babies throughout history and in other cultures are born at home, with the implication that because most people have done childbirth this way, it's the most natural and best way.  The fact that the overwhelming majority of births happened at home is true, but it is significantly contextualized by these statistics:  a woman's odds of dying during one of her childbirths used to be 1 in 8, and 1 in 4 babies died in their first year.  Another labor and delivery procedure that often gets described unfairly:  C-sections.  While it might be true that they get utilized more often than they should (I haven't done any research on this), it's also important to remember that they provide an enormous service.  Before C-sections (and before surgery was a safe option in general), if babies got stuck, women would just continue to labor (sometimes for up to THREE WEEKS) until either the mother or baby gave out.  People didn't do hospital births or C-sections throughout most of history because it wasn't an option, or they couldn't afford it, or because until very, very recently (like when doctors learned about germ theory and anesthesia, which happened less than 200 years ago), there was nothing doctors could do to make things better and a lot they could do to make things worse.  I am so glad that we now have hospitals available, with knowledgeable doctors and modern medicine and much safer options for labor and delivery.  (To be fair, home birth is a lot safer than it used to be as well, thanks to modern medicine -- but this section is intended to be a defense of hospital births.)

Right Person in the Right Place at the Right Time and it Changed the Course of History moments -- If you like this framing of historical events, this book is chock full of those kind of facts.  For example:  a man named Canvass White invented hydraulic cement in the 1820s, which allowed the Erie Canal to be constructed and goods to be shipped efficiently from New York to the rest of the country, which transformed Manhattan from an obscure town of 10,000 to a major economic center of half a million people in less than 50 years.  It also gave America a major advantage over Canada at a time when it was still an open question who would be the economically dominant country in North America.  While I think this type of thing can be overdone (negating the possibility that someone else could've discovered the same thing soon after, or some other clever way to do the thing could have been worked out), it's fun to imagine an alternative world where, were it not for that one person in that one place at that one time, New York City could be a tiny town of no importance, or Canada could be the world power to be reckoned with.

Wednesday, November 25, 2015

Thankfulness about good care for Joshua

I've written lots of posts about what's going on with Joshua's health, but never a post about how much we have to be grateful for, specifically in regard to his special needs.  So this Thanksgiving week, here is a list of the ways we've been cared for, both by other people and providentially:


  • Going through 12 surgeries, half of which were in-patient with a PICU stay, Joshua has experienced no serious infections, no complications, and no bad reactions to anesthesia.
  • Dozens (maybe hundreds?) of people have helped us care for him - doctors and nurses and other health care professionals; PTs and OTs and STs.  And (almost) without exception, they have been great and done such a good job!
  • We had access to a great local children's hospital in CHKD while we lived in Virginia.
  • Church and friend support - people have brought us meals (once in the hospital, on Thanksgiving Day 2011), loaned us cars for the month, watched our dogs, prayed for us, sent us care packages at the Ronald McDonald House, called, texted, emailed, and Facebooked their support.  We have been so surrounded by love and support, especially from our churches.  
  • Joshua has attended 3 public schools and at each one, the teachers and therapists have been so good at their jobs and truly cared about Josh.  
  • Several things with health insurance:  we were blessed to have great health insurance when Josh was born and ran up his biggest hospital bill; Obamacare allowed us to move around and for Kenny to pursue new job opportunities without worrying about Joshua's pre-existing condition; and moving back to Nevada has allowed us to access Medicaid as a secondary insurance, which will cover private feeding therapy.  
  • Our extended family on both sides of the family has been very supportive and actively involved in Joshua's care, even when he was on the feeding tube and oxygen.  
  • Kenny and I both had good maternity and paternity leave policies at work, allowing us to stay with Joshua while he was in Salt Lake City.  
  • We were blessed that Josh was born at this time and place in history, when there are the right medical interventions to keep him alive and thriving.  
  • Considering the odds with his particular deletion, we are very blessed that he did not have a serious heart condition requiring heart surgery.  Although we don't know what the future holds, we are blessed that he wasn't more seriously impacted by his chromosome deletion in a whole host of ways.  
  • With developmental delays, there's extra joy and celebration when your child reaches a new (and sometimes hard fought) milestone.
  • Kenny and I have been on the same page regarding Joshua's medical care.
  • The Ronald McDonald House allowed us to have a comfortable and affordable place to stay, with home cooked meals provided each night, while Joshua was in the hospital out of town.  
  • I've made new friendships with other parents going through similar things.  
  • Our locations at different points in Joshua's life have been providentially helpful:  being born in Reno meant that he had access to a jaw distraction in Salt Lake City rather than getting a tracheostomy like he would have in certain other parts of the country; moving from the mountains down to sea level Virginia meant that he was able to go off supplemental oxygen, and later that we were able to get genetic testing done; and then moving back from tropical Virginia to dessert Reno meant that Josh's problems with asthma and allergies decreased substantially.
  • Monday, November 23, 2015

    Tube weaning story

    [Note to any blog readers who stumble upon this post:  this was written for a different website and posted here for convenience.  But you are welcome to read it!]

    My son Josh was born with Pierre Robin Sequence (PRS) and a rare chromosome disorder called 4Q deletion syndrome.  Children born with PRS have a recessed jaw and a cleft palate, which causes trouble with both breathing and eating.  Children with 4Q deletions often have feeding and swallowing difficulties as well.  Josh started using an NG tube on the day he was born, and he had a Mic-Key G-button placed at 4 months.  Although he was able to start tasting food as an infant, he was almost exclusively tube fed for his first 18 months, while he underwent a series of craniofacial surgeries that made it safer and easier for him to eat.

    After he finished the surgeries and passed a swallow study, his pediatrician recommended that we immediately start an aggressive tube weaning program (cutting the number and volume of daily tube feeds he received by a third), which she hoped would kick-start his oral eating by making him feel hungry.  We tried that for a month, but his oral eating did not take off as hoped, and instead he just lost weight.  At that point, we realized that he still had some weakness with chewing and swallowing, as well as a significant oral aversion to almost all foods.  We started him in feeding therapy with an occupational therapist, we increased his tube feeds back up to previous levels, and we let him work on oral eating at a pace that was comfortable for him.  Every 3 months, we made a list of everything he ate orally for a week, and then we would check in with a nutritionist to see how he was doing with calories and nutrition and decide whether we could decrease the volume of tube feeds.  (Just to be clear, we were not waiting for him to get to the point where he ate a perfectly balanced diet of all the most nutritious table foods - his diet was and still is extremely limited, mostly pureed / smooth / easy foods, and was never the table food I prepared for the rest of the family.  His nutritionist understood the limitations and was not looking for perfection, but she helped us make sure that he wasn't experiencing any serious nutritional deficiencies from his limited diet.)

    He made progress very slowly, and sometimes (often?) it felt like we would never get to the point of tube weaning.  There were many days where I felt discouraged about the slowness of the process - even though I know each child goes at their own pace, it sometimes felt like we were stuck in a permanent rut.  But we were so grateful to have the feeding tube, so that he could stay healthy and continue growing and developing while we found the oral eating approach that would work for him.

    Josh's stoma2 months after we took out the G-button.
    The tube weaning process took a few years, but eventually Josh increased his daily calorie intake enough that we were able to stop using his G-button, and we found the combination of foods that he was able to eat, willing to tolerate, and that would provide him a good nutritional balance.  We still use supplements, high-calorie nutritional drinks, and multi-vitamins to round out his limited diet.  The doctors decided to keep Josh's G-button in for a full year after he stopped using it to make sure that he would continue to gain weight, take his medicines, and continue to orally eat as we made some big changes (our family moved across the country during this process).

    Our GI doctor gave permission for us to take out the G-button around Joshua's 5th birthday.  We took the button out at home, and we celebrated with cupcakes with green frosting and sprinkles (Josh's request).  We covered his stoma with gauze and medical tape for the first week, but it stopped leaking after the first few hours.  Josh did great with the button removal!  We thought that it might be really hard for him to see it go, since he had it in place for his whole life and we all treated it like a part of his body, like a second belly button.  But I think it helped that he had some control in the process (he helped us take the button out for the final time) and that we had a celebration (so he understood that it was a positive change).  We had an appointment with our pediatric surgeon a month later, and the surgeon said that he didn't need it surgically closed since the stoma stopped leaking on its own.

    To any of you who are weaning your super tubie, please don't be discouraged if it takes a long time, and especially don't be discouraged if it takes longer than your doctors think it should.  Our doctors seemed to be mystified that Josh couldn't eat 100% orally the minute he passed his swallow study.  But in connecting with other tubie families, I've learned that every child really is different in how they wean - they all have different medical and developmental needs, not to mention different personalities!  You know your kid best, and for many kids, letting them take their time with the tube weaning process is the best (and only) thing you can do.

    Thursday, November 12, 2015

    Thankfulness Post Year 3: On the Lighter Side

    This is my third year doing a thankfulness-themed post.  The last two years, I tried to make my posts more "serious" (Gratitude Year 1Gratitude Year 2) -I wrote in part about how thankfulness doesn't just need to be about the things that make us happy.  But sometimes, thankfulness is exactly about the things that make us happy!  So this year, I'm thankful for those people, places, and things that bring entertainment, happiness, and beauty into our lives by their existence.  And it's done in list and countdown form, because I am thankful for those blog formats :).  Please add your favorites in any of these categories (or make up your own) in the comments!  I am thankful for:

    6: Excellent workplace-themed TV shows available on streaming:
    • West Wing - on Netflix, about the White House
    • House - on Netflix, about doctors
    • Mad Men - on Netflix, about advertisers
    • Breaking Bad - on Netflix, about drug dealers (this counts as a workplace theme, right?)
    • The Good Wife - on Amazon, about lawyers and politicians
    • Newsroom - on Amazon, about journalists

    5:  Songs that are easy like Sunday morning:


    Mad Hatter desserts
    4: Great coffeeshops:

    • Brewed Awakenings - This was my go-to coffeeshop during college in Providence, RI.  My roommate Judy and I spent countless hours in this place.  Drink recommendation:  Cookie Monster.
    • The Mill - This coffeeshop in Lincoln, NE has been my hometown coffee destination through so many stages -- in high school I went here when I wanted to feel grown up; now I go here when I want to feel young.
    • Milagros - I spent a year living in Alamosa, CO (near the Great Sand Dunes) and this lovely coffeeshop was my home away from home.   They frequently hosts community events and their proceeds benefit the local homeless shelter.
    • Mad Hatter - This is one of many great coffeeshops in Durham, NC that I frequented during law school.  Mad Hatter gets the shout out because I have some nice memories of meeting Kenny there, and also because look at those cakes!


    3:  Favorite sporting events:
    Olympic triple jump

    • March Madness - because in any given NCAA tournament game in which Duke plays, there is a 75% chance that Duke will win
    • College football - So much emotion is packed into this sport at this level of play.  The 2015 Nebraska Huskers have dramatically illustrated the thrill of victory and the agony of defeat.  
    • Summer Olympics - One of the few opportunities to see triple jump on broadcast television.  (Or whatever your unusual warm weather sport of choice is.)  


    2:  Christian woman Facebook personalities / bloggers who are funny and nice -

    • Jamie the Very Worst Missionary - one of my favorite blogs by her is #blessed
    • Jen Hatmaker - one of my favorite blogs by her is yeses and nos


    1:  Lake Tahoe.  (Does this need an explanation?  No.  It does not.)

    Tuesday, November 3, 2015

    Life Rhythms and Anglicanism


    One of my favorite parts of caring for young children is how your life takes on a certain rhythm.  There's the daily rhythm of naps and snacks and playtime, and it can start to feel like Groundhog's Day because every day is so much the same - except that the kids are going through seismic changes in the first few years and the routines and dependable rhythms can be very reassuring (to both kid and adult) as you transition through constant change.

    Then there's the seasonal rhythm, where so much of what you do with kids is tied to the time of year - picnics in the spring, sandcastles in the summer, pumpkin patches in the fall, snowmen in the winter.  Every holiday, every birthday, every day of celebration is a big deal.  (When I think back to my own childhood, so many of my favorite memories are tied to these seasonal events - watching the Big Bang Boom firework show over Skyview Lake in the summer; going to Husker football games in the fall; sledding precariously down the hill at Mahoney State Park in the winter; dyeing Easter eggs at my Grandma's house in the spring.)


    As adults, we necessarily lose some of this focus on the daily and yearly rhythms because there's so much to squeeze into the day however you can - work, household chores, caring for others, fitness, etc. - but I think people still find ways to recognize the seasonal rhythms and you see it all the time.  Some examples:  if people are posting daily Facebook statuses about what they are thankful for, what month is it?  If every single product in the grocery store comes in a pumpkin spice version, what season is it?

    I think we love the seasons and seasonal traditions so much because we are built to live our life in a series of rhythms (daily, weekly, yearly, and the different seasons of life).  And now I'm finally going to connect all this "rhythm" talk to the title of the post - Anglicanism.  I attended an Anglican church for awhile in Virginia, and learned that it's a great denomination for people who are Protestant and looking for a liturgical church with a deep and rich history.  One of the most important distinctives of Anglicans is their use of The Book of Common Prayer*, which provides:
    • Daily prayers:  There are morning, noon time, and evening prayers.  You can pray some or all of these, and you can pray them individually or with a group.  
    • Seasonal prayers:  There are special prayers for church holy days (such as Easter, Christmas, etc.) and also for secular holidays (like Independence Day).  These give you beautiful, deeply thought out words to pray to commemorate the annual events of the season.  
    • Prayers to honor special occasions:  There are prayers for the birth of a new child, marriage, sickness, the loss of a loved one -- all the occasions that are the most important parts of life, and where it's sometimes hard to find exactly the right words to try to match the importance of the event taking place.  
    • (There's a lot of other kinds of prayer contained in the book, but I am beyond unqualified to give an exhaustive list. ) 

    The Anglican church also observes the church calendar very faithfully, and so each year you have somber / contemplative times (like Advent and Lent) and celebratory times (like Easter, which it turns out is more than just the one day when the bunny shows up).  There is an elaborate celebration of Holy Week.  There is recognition of days that I had never paid much attention to before, such as All Saint's Day.  And there is the acknowledgement that, even with all the special days and special seasons, most of the church calendar (and most of our lives) are lived in "Ordinary Time".

    The predictable rhythm of spending a few minutes each day in The Book of Common Prayer can provide great stability and reassurance in the middle of the ups and downs of life.  And the seasonal rhythms of the church calendar remind you to honor life's ups and downs - to celebrate during the good times, to mourn during the hard times.

    One other thing I absolutely love about the Book of Common Prayer is that it gives you good direction in how to pray.  Growing up, I was taught that prayer should consist of  Adoration, Confession, Thanksgiving, and Supplication.  It's very easy to miss a LOT of things in every single one of these categories, as we tend to make our prayers all about us rather than about God.  The Book of Common Prayer can be a big help in deepening and broadening your prayer life.


    *I wrote in my Resolutions blog post that I planned to use the Book of Common Prayer regularly this year (which is a resolution I've mostly stuck to, unlike some of the others) - this post explains why.

    Monday, October 19, 2015

    Josh age 5 health update

    I haven't given a Joshua health update in awhile, and the reason is:  he's doing great!  Since moving to Reno, we haven't had any sickness, he's been able to drop a few meds, and he really likes his new preschool / teacher / therapists.  He's adjusting to all our life changes well and he's getting along well with cousins and other friends.  Honestly, this move (both in general and for Josh in particular) is going better than I dared to hope it would.  This blog post has some recent updates at the top and then a more overview type update below.

    Recent Updates:
    • We took his G-button out last month and it closed in less than 4 hours - isn't the human body amazing?!  This is a great outcome.  Also, he is handling it well psychologically - he doesn't seem to be freaked out that it's gone, he's eating and drinking fine, etc.
    • The move to Reno has been great for Joshua's seasonal allergies / asthma, which were getting so bad in Virginia that we weren't able to control them even with a mix of 6 meds, and the next step would have been seeing an allergist.  Because Reno is so dry, we've been able to drop about half those meds and manage things much better, which is a positive quality of life improvement for J.  
    • I was a little worried how the school transfer was going to go, since Nevada is a low tax state (great when you're the tax payer, less great when you need government services).  Josh's new school has been great, and I want to give a special shout out to the principal, who seems to approach IEP meetings with the attitude of "what does this kid need to succeed and what can I do to help him get there", rather than starting with the attitude that there are limited resources and only the most dire situations will be reason to loosen the purse strings.  I don't know how she manages the money side of things, but i so appreciate that it feels like we're working together.  
    • Our "new" doctors in Reno are actually a mix of mostly his old providers (who are encouraged at how well he's doing now) and a couple new (so far, so good).  The new docs often want to do their own tests for their records (such as hearing tests, VEEG, etc.), so it's taking some extra time and energy to get through this most recent round of doctor visits.  There are a few docs we will eventually need to see in either Vegas, Salt Lake City, or northern California, but fortunately those appointments should occur less than one a year.   
    • Josh has a minor urology surgery coming up next week - it's called an inguinal hernia repair.  It's outpatient but under general anesthesia - we would love prayers for no complications and a quick and easy recovery.

    Overview Update:
    It's got to be a little confusing when I write about how great Josh is doing, or for those of you who see him at church and playdates and family get togethers and in many ways he seems like a "normal" (as in medically and developmentally typical) kid -- but then I also do tons of posts about doctor visits, medical stuff, IEPs, and therapies.  One day he's tearing through the maze at the pumpkin patch, and the next day we're having our Katie Beckett home visit.

    So which is it - is he doing great or does he still have a lot going on?

    The anwer is:  it's both, at the same time.  (I think many parents of kids with mild to medium affect chromosome disorders would agree with this.)  His scariest and most complicated health issues were all caused by birth defects, and those have been surgically repaired.  His life largely consists of enjoying regular childhood activities like going to the park, playing with friends, etc.  Thanks to the grace of God, really good care from teams of doctors and therapists, and medical interventions like oxygen and the feeding tube and all the surgeries, he's doing really well now.  And while we're very grateful that he is where he is, we still depend on regular help from the doctors and therapists to keep him doing as well as he is.

    Why does he still go to doctors so often?

    • For the known - Medically, he's got a lot of different things going on.  They are all pretty mild and well managed, thankfully.  We haven't had a hospital admission or ER visit or even so much as a school sick day for several months.  But to keep him healthy, we're checking in with 7 doctors, we're administering medicines and supplements throughout the day, and we're keeping a running list of anything going wrong.  
    • For interactions when multiple systems are affected - There are two things to track when lots of systems are affected:
      • Figuring out the problem - We notice a problem and have to consult multiple doctors and therapists to figure out what's going on and whether we can fix it.  Often it's more than one thing and nobody's sure exactly what to do, so we try different things until something works or he grows out of it.  (Some examples of this:  getting off the G-tube; falling / balance problems for years when he was learning to walk; looking sideways out of his eyes; severe monthly nausea attacks.)
      •  Domino effect - If one problem develops, it can set off a chain of other problems, so doctors are more proactive when Josh gets sick than when medically typical kids get sick.  One example of this -- last year I took both Josh and Zoey in for a sick visit because they both had cough and cold.  It was one of those borderline sicknesses where it's bad enough that you want to get them checked just in case, but you know the doctor is probably not going to do anything.  For Zoey, who was the sicker of the two, that's exactly what happened - they checked her over for 10 seconds and said to call back the next week if she was still sick.  For Josh, presenting with the exact same symptoms of cough and cold, they gave him a nebulizer breathing treatment in the office, a steroid, prescribed an anti-nausea med and a high dose antibiotic, and made a change to his G-tube feeds.  He doesn't get sick too often these days, and he's not nearly as medically fragile as he used to be, but when he does get sick it's just treated differently.  
    • For the unknown - With a chromosome disorder, we can expect new health issues to arise more often than for medically typical kids, so we need to do well checks with specialists more often to watch for certain things.  (This is the main reason we currently see neurology and ophthalmology.)


    And why all the therapies?

    Developmentally, he seems to eventually hit every milestone, but it usually takes extra help (from therapists), extra practice (with us), and just extra time.  Depending on what the skill is and how long it takes to master as compared to normal, this is sometimes a big deal and sometimes a small deal.  (Or, as is often the case, it feels like a big deal when you don't know if / when he's going to master a skill, and then once you see he's going to get it, it instantly turns into a small deal.)  Right now, his skill levels are all over the place -- there's some areas where he's very close to age level (academic skills like knowing his letters, gross motor skills), there's others where there's a significant delay (self-care, fine motor), and then others where it's a medium delay and it's somewhat context specific (speech, social skills).  (And if you're wondering how I know where he's at with all this stuff - it is unreal how often special needs kids get evaluated.  I could probably give you percentiles and paperwork for where he was at in every developmental area for every quarter of his life, starting at birth.)

    This part of his care has gotten a lot easier for me now that he's school age and most of his therapies take place at school, but I still spend a chunk of my time communicating with teachers and therapists, trying to figure out if there are toys or activities or therapies or IEP goals that we could add to be helping him more, and figuring out our public and private insurance options to help pay for private therapies.  I wrote awhile back about how important therapists are, and I still can't say enough about how valuable the work of PTs, SLPs, and OTs is.

    I write all of this out to give you a better picture of where we are and what Josh's life is like.  As I said above, I think this is a pretty typical situation for kids with mild to medium affect chromosome disorders - the details would be different for every kid, but this is the idea.

    Tuesday, October 6, 2015

    My Thoughts on "Daring Greatly"

    Lately, I've been looking for ways to be more instrospective in understanding what's going on with my emotions, honest in communicating these things to my nearest and dearest, and courageous in finding ways to live out my ideas and desires.  Or, to put it in popular culture speak, i want to be more authentic.  Or, to put it in Brene Brown speak, more vulnerable and whole hearted.

    Why do I want this?  Two things.  First, I think honesty leads to deeper and better relationships (in friendship, family, marriage - any important relationship), and who doesn't want that?  Second, I'm (possibly) at the cusp of a life change, as my kids rapidly approach school age, where I need to think about what I'm going to do with all the new hours of time - back to work, volunteering, working on other projects -- and I would like to be thinking about that from a place of honesty and whole heartedness.

    This amazing quote is the inspiration for the title of the book.
    One of the things I've done to learn more about how to achieve these goals is to read Brene Brown's wildly popular book, "Dare Greatly".  I usually steer clear of self-help books (for reasons explained below), but every once in awhile a book comes along that is so widely embraced by culture that you want to read it just to see what the big deal is.  Plus, it addresses all the stuff I just wrote about in the first two paragraphs.

    I agree with the vast majority of "Daring Greatly".  I think Brene Brown is absolutely right that the big things holding us back from showing our true selves are shame and fear; that if we want to learn to be vulnerable and honest, and to produce things (like art, writing, a new business venture) that people might attack, we need to place our self worth somewhere other than what people think of us.  I think she's right that you need to have gratitude to experience joy.  I think she's right about a whole host of things, and this is why so many people love her book.

    But for me, there's one big piece missing in the book.  Brene Brown's suggestion for where to get your self worth from is to believe that "I am enough."  This ties to my problem with self-help books in general:  they nail a problem, but then give a sort of fuzzy solution.  For example, this idea that "i am enough".  Brene Brown makes an excellent, compelling argument that so much in our culture makes us feel like we're not enough, that feeling like we're not enough steals our happiness, and that if we could just believe that we are enough without attaching our self worth to our abilities / accomplishments / other people's views of us, then it would allow us to dare greatly and live whole-heartedly.  The problem is, why should I believe that I'm enough?

    There are a number of different reasons you could believe that you're enough, some philosophically stronger than others, but the Christian faith addresses these same things and gives reasons outside of yourself that offer this same freedom that Brene Brown is saying is the key to joy.  The difference is, in Christianity, you look to Jesus for your self worth rather than yourself.  If we believe that we are fully, forever forgiven and justified for every bad thing we have done and every bad part of our selves, and that we've been adopted and embraced into God's family -- that offers exactly the sort of freedom and joy and chance at vulnerable and whole hearted living that Brene Brown talks about.  One one hand, it's similar to the "Dare Greatly" idea, because it's all about getting rid of our shame and living a life not tied to our accomplishments and others' opinions.  But on the other hand, it's totally different, because our worth rests completely outside of ourself.  This is good news!

    I imagine that some people who read this might disagree with me, as it seems like I'm one of the very very few people who have read the book and didn't love every single thing about it.  So in the spirit of both Daring Greatly and Christian freedom, please feel free to give me your opinion about the book, especially about the "I am enough" stuff.

    {Post script:  Even though I just wrote a blog post about how i'm trying to increase "authentic living", this change is aimed at real life relationships, not my Internet persona - so this blog is going to stay the same.  One of the dilemmas of keeping a blog is balancing transparency with the privacy / protection of those you love.  It can be a real gift when people open up and share the messy, difficult parts of their lives; but it's hard (for me) to figure out how to do that in a way that is respectful and loving towards those who are walking through those experiences with you.  So I try not to talk in detail about my bad days on the Internet.  I am going to stick with this practice, but let me just say, in a very general way:  My life is not perfect.  I fail at being the ideal parent and spouse every day,  my house is never up to Pinterest standards in any way, my kids misbehave, and we have plenty of moments around here of frustration and boredom and messiness in every sense of the word.  I take it for granted that it's commonly understood that *everyone* has bad days, and also that (most) everyone tends to present their highlight reel on the Internet rather than laying out the details of their bad days.  But please know that bad days happen to me, and to everyone else in the history of the world.}