Why I Participate in Awareness Days

Example awareness meme, also a plug for a great organization!

If you have been Facebook friends with me for awhile, you may have noticed that I frequently post about special needs awareness days, such as the picture in my profile right now (if you're reading this in the week I post it), or like this meme to the left.  I also post frequently about various things in the special needs world...pictures of our appointments, articles about IEPs, and so much more.  Why?

Part of it, as with all things social media, is for attention.  (I don't mean this accusatorily - I post stuff daily, so whatever finger might be pointing at you the reader with this statement, there are four big fat fingers pointing back at me.)  But sometimes I'd rather not have the attention for this particular thing.  It's always fun to post pictures and get likes from a day at Lake Tahoe, but it's not always fun to draw attention, yet again, to the special needs stuff.  Sometimes it sounds very appealing to fly under the radar with these kinds of things.  Here is why I post about awareness days and doctor's appointments and all the rest of it anyway:

• Education - It helps you know how to support me, and possibly also how to support those close to you who have a loved one with some kind of disability or special needs.  It gives you a picture of what we might be thinking about and how to talk to us.  I *welcome* conversations about the special needs world and I am not easily offended if you don't know the exact words to use :).
• Personal Sharing - When I post about appointments and milestones, it lets you celebrate or mourn with me.  If people want, they can pray for us.  It might give you some insight into why I'm looking extra happy or extra frazzled on a particular day.  There are things about this life that can feel very lonely, and it helps tremendously to be able to share it.  
• "Shine Bright" - when Josh was first born with lots of health difficulties (here's his story)(here's Kenny's excellent book about his story), and then again when he got his genetic diagnosis, it raised lots of questions about what his life was going to be like.  At both of those times, I wish I could've seen into the future how much good is in his life.  He's happy, he gets to do lots of fun and normal stuff, he's learning and growing, he gives and receives love - although there are struggles and extra appointments, it's a good life.  I hope this message reaches a few people who need to hear it - if you get a prenatal diagnosis of a genetic disorder, if your child receives a genetic diagnosis - there is so much beauty and goodness in this life.  (And if it would help you to talk to someone, I would love to be that person.  If you're not ready to talk but want prayers, I would also love to be that person.)  
• For decision makers - If you are on the school board, if you are a leader in your church, if you are a leader in your community or part of your local or state government - I hope you see stories like mine from time to time, and they convince you to put more emphasis on inclusion in schools, on creating a special needs program in your church, on funding a job training program for the developmentally disabled, or anything else that might come up in your area of influence.  
• For voters - As health care and disability issues come up in elections, I hope my Newsfeed gives you a story to connect with as you're thinking about how to vote.  
• For my tribe - If you are part of a special needs subculture, everyone lights it up on awareness days.  My Newsfeed is filled with "Shine Bright" profile pictures this week and it makes me smile to see the faces of fellow 4q kids.  It's like we're all sending our bat signal to each other.  

That's why I do all these special needs posts.  Other special needs parents, what would you add?